MSMS: The Many Stories of Multiple Sclerosis
Here we will hear real people, Australians and occasionally others round the world speaking on Multiple Sclerosis (MS).
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This podcast began with Colleen's hope of building greater understanding of what is involved in the HSCT procedure, through the sharing of stories of Australian people living with MS who had undergone HSCT.
That initial focus will expand to include discussions on a variety of issues relevant to Australians living with MS, such as symptoms, medications, and therapies.
Through sharing we support one another, reduce the isolation of living with Multiple Sclerosis, and foster a sense of community while raising awareness of the impact of this progressive disease on those living with it.
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The beginning series focuses on the choice of Hematopoietic Stem Cell Transplant (HSCT) - the variety of challenges faced, and individual outcomes of that procedure.
"MSMS: The Many Stories of Multiple Sclerosis" podcast's first episode follows your host Colleen and her husband Kel's unique journey through HSCT, a choice Colleen made when she found herself rapidly losing the ability to walk.
Married just over five years, Colleen and Kel travelled to Moscow Russia on a mission to stop the progress of Colleen's MS.
You'll hear of the unexpected obstacles they faced, one after the other, Colleen as patient and Kel her champion.
Surviving an experience that could not have been expected nor could have been prepared for, Colleen and Kel have shared their story in Australian newspapers, radio and television and here in this podcast episode tell more of their incredible story.
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Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in this podcast are those of the host or guest(s).
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.
MSMS: The Many Stories of Multiple Sclerosis
See the notes here for Buddhist nun's story of Multiple Sclerosis
There are so many living with Multiple Sclerosis, and connecting with each other in whatever way we can, can comfort and support no matter what stage of our MS journey we find ourself.
Colleen was recently contacted by the Modern Buddhism Podcast who wished to share one of their episodes, the story of Buddhist nun Gen Kelsang Demo who lives with Multiple Sclerosis.
Colleen tells of the history provided, and can recommend watching or listening to Gen Demo’s story, which can be viewed in video format on YouTube via this link.
https://www.youtube.com/watch?v=h2GuSh80YXM
and in Audio format on all main podcast platforms, this is Spotify:
https://open.spotify.com/episode/2hjhZVSGNxGPSMOnfIcRIM?si=RSYDyRW_QL6FhZFdH22N0Q
Colleen thanks the Modern Buddhism Podcast for sharing this story.
You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS.
https://www.facebook.com/groups/787070671345994
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice.
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after treatment - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.