MSMS: The Many Stories of Multiple Sclerosis
Here we will hear real people, Australians and occasionally others round the world speaking on Multiple Sclerosis (MS).
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This podcast began with Colleen's hope of building greater understanding of what is involved in the HSCT procedure, through the sharing of stories of Australian people living with MS who had undergone HSCT.
That initial focus will expand to include discussions on a variety of issues relevant to Australians living with MS, such as symptoms, medications, and therapies.
Through sharing we support one another, reduce the isolation of living with Multiple Sclerosis, and foster a sense of community while raising awareness of the impact of this progressive disease on those living with it.
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The beginning series focuses on the choice of Hematopoietic Stem Cell Transplant (HSCT) - the variety of challenges faced, and individual outcomes of that procedure.
"MSMS: The Many Stories of Multiple Sclerosis" podcast's first episode follows your host Colleen and her husband Kel's unique journey through HSCT, a choice Colleen made when she found herself rapidly losing the ability to walk.
Married just over five years, Colleen and Kel travelled to Moscow Russia on a mission to stop the progress of Colleen's MS.
You'll hear of the unexpected obstacles they faced, one after the other, Colleen as patient and Kel her champion.
Surviving an experience that could not have been expected nor could have been prepared for, Colleen and Kel have shared their story in Australian newspapers, radio and television and here in this podcast episode tell more of their incredible story.
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Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in this podcast are those of the host or guest(s).
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.
MSMS: The Many Stories of Multiple Sclerosis
We all have a life, ours is changed by MS. Read my 'diary' with me about how things changed ...
In this solo episode, Colleen reflects on life before HSCT, supported by writings she'd completed in earlier years, before learning of HSCT..
"This solo episode is a bit of an indulgence I suppose. I began recording this after thinking about ways to provide value to listeners - seeing the number of listeners continue to rise while I'd been ill; without new episodes, it was obvious people wanted to hear stories from others, we all hunger to share and to know how others deal with their MS - whether interested in HSCT or not, it's natural to be curious!
While I'm not quite up to recording interviews again just yet (I'm intending to be back soon!) it occurred to me that I'd written many notes and articles about my MS, before having HSCT. Reading through those brought back many memories of my life before HSCT. I think perhaps others no matter what medical intervention they've chosen for their MS will appreciate hearing another's experience of living with MS, and this has been mine.
Colleen
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice.
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.
You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS.
https://www.facebook.com/groups/787070671345994
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice.
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after treatment - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.