MSMS: The Many Stories of Multiple Sclerosis
Welcome to MSMS: The Many Stories of Multiple Sclerosis
Here, you'll hear real stories from real people—Australians and occasionally others from around the world—sharing their experiences of life with Multiple Sclerosis (MS).
The podcast began with Colleen's hope to build greater understanding of Hematopoietic Stem Cell Transplant (HSCT), by spotlighting the stories of Australians living with MS who had undergone this intense and often misunderstood procedure.
What started as a focus on HSCT has since grown to include a range of conversations relevant to Australians living with MS—honest, heartfelt stories that speak to the reality of this progressive disease.
By sharing our experiences, we support one another, reduce the isolation that so often comes with MS, and foster a sense of community—while also raising much-needed awareness.
The first series of MSMS centres on HSCT—the decision-making process, the challenges faced, and the individual outcomes that follow.
In Episode One, you’ll meet your host Colleen and her husband Kel, as they take you on their extraordinary journey to Moscow, Russia. It was there, just 5 years married and desperate to stop the rapid progression of her MS, that Colleen underwent HSCT.
What followed was an ordeal of unexpected challenges—physical, emotional, and logistical. Through it all, Colleen the patient, and Kel her steadfast champion.
Their story has been shared in Australian newspapers, radio and TV—but here, in their own words, Colleen and Kel share even more of their remarkable story, behind the headlines.
---
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in this podcast are those of the host or guest(s).
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.
MSMS: The Many Stories of Multiple Sclerosis
Colleen & Kel's unique experience
Diagnosed with Multiple Sclerosis in 1998, Colleen initially saw her symptoms fade, eventually making the disease seem unnoticeable. However, five years after meeting and marrying her husband, Kel, it became clear that Colleen was losing her ability to walk. In 2017, the couple embarked on a life-changing mission to stop the disease’s progression.
Their journey has led to appearances in Australian newspapers, radio, and television interviews. In this first podcast episode, Colleen and Kel share their unique HSCT experience.
With no prior podcasting experience, Colleen dove into learning the ropes. After Kel agreed to join her for a 'test podcast interview,’ that first recording became the debut episode of this podcast.
Thank you for tuning in! Be sure to return for the next episode, where you'll hear a completely different perspective on living with MS.
You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS.
Multiple Sclerosis and HSCT Australia - Facebook group
PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen
Buy Colleen a Coffee - thank you!
Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice.
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...